I’m on about 5-6 today so possibly didn’t absorb every thing you said and happy to coffee you when I am on 4 and can comprehend how but otherwise YOU SPEAK MY LANGUAGE god I need a meatscon. And while “how are you” is at least curious and polite, it’s still the less-exhausting end of “are you alright” which I could write an essay on don’t get me started. Not that I’m not grateful forever for Those Who Care. I am sorry for your troubles but out of grimness roses flourish I ❤️ your idea and nice to meet you 🌟
My response to “how are you” tends to be “I have no idea how to answer that question.” Both befuddling and likely causing a more negative emotion in the question asker. What then follows is often either a total over-explanation (if I have energy) or radio silence. Loving this as a go-to! However, anyone asking “are you feeling better” may not be so deserving. That one is the bain of my interactive existence.
I've actually been familiar with this concept for a while, (I use a scale to describe how bad my anxiety/rage is that has 1 as the worst, and I call it Bethcon) but I've struggled to adapt the idea to a (usually) non-painful but limiting physical condition that has inconsistent manifestations that limit me in varied ways.
I way overdid it yesterday. 'Cause I'm dumb. I changed altitude a whole bunch through a multi-layer inversion, I drove for almost three hours. I was up way late, and I had a (small) sniffer of whiskey (THE HORRORS) to celebrate a friend's success. (AFTER the drive.) Today, I have very poor equilibrium. I can't drive. It would be both dumb and dangerous. But I don't hurt! Someone could visit me. If they picked me up I could take a slow hike with them. I could paddle on a calm lake. But people generally seem to think you are fine if you aren't in pain. If I had triggered different limitations, I might be able to drive, but I might not be able to paddle or hike. It's the inconsistency that drive me nuts and makes this hard to turn into a number.
I wonder if your audience might be willing to share some of what they came up with to help get the mental energies grooving?
Ahhhh the many flavors of illness! You don't have to be in pain—there's balance issues, bathroom burdens, brain fog, anxiety, the list goes on...all potentially unpainful but still debilitating.
I'd think of it less like a pain scale, and more like a load-function scale. For me, the warning sign is almost always extreme pain...but for you, you may have a few warning signs, like bad equilibrium or a fluttery heartbeat.
Yes, I hope people share! I'll add a prompt to the post. :)
I’m on about 5-6 today so possibly didn’t absorb every thing you said and happy to coffee you when I am on 4 and can comprehend how but otherwise YOU SPEAK MY LANGUAGE god I need a meatscon. And while “how are you” is at least curious and polite, it’s still the less-exhausting end of “are you alright” which I could write an essay on don’t get me started. Not that I’m not grateful forever for Those Who Care. I am sorry for your troubles but out of grimness roses flourish I ❤️ your idea and nice to meet you 🌟
I've never heard "out of grimness roses flourish" but what a gorgeous turn of phrase!
I think you should write that essay...oof, I feel that.
May the power of the Meatscon be with you!
Absolutely love this! It is so hard to explain to “normal” people and if you mention spoons they just think you are weird!
My response to “how are you” tends to be “I have no idea how to answer that question.” Both befuddling and likely causing a more negative emotion in the question asker. What then follows is often either a total over-explanation (if I have energy) or radio silence. Loving this as a go-to! However, anyone asking “are you feeling better” may not be so deserving. That one is the bain of my interactive existence.
SAME. I'm a terrible liar, and the truth is tangly.
Are you feeling better...lol.
Thanks!
You had me at, well, quoting me.
I've actually been familiar with this concept for a while, (I use a scale to describe how bad my anxiety/rage is that has 1 as the worst, and I call it Bethcon) but I've struggled to adapt the idea to a (usually) non-painful but limiting physical condition that has inconsistent manifestations that limit me in varied ways.
I way overdid it yesterday. 'Cause I'm dumb. I changed altitude a whole bunch through a multi-layer inversion, I drove for almost three hours. I was up way late, and I had a (small) sniffer of whiskey (THE HORRORS) to celebrate a friend's success. (AFTER the drive.) Today, I have very poor equilibrium. I can't drive. It would be both dumb and dangerous. But I don't hurt! Someone could visit me. If they picked me up I could take a slow hike with them. I could paddle on a calm lake. But people generally seem to think you are fine if you aren't in pain. If I had triggered different limitations, I might be able to drive, but I might not be able to paddle or hike. It's the inconsistency that drive me nuts and makes this hard to turn into a number.
I wonder if your audience might be willing to share some of what they came up with to help get the mental energies grooving?
Ahhhh the many flavors of illness! You don't have to be in pain—there's balance issues, bathroom burdens, brain fog, anxiety, the list goes on...all potentially unpainful but still debilitating.
I'd think of it less like a pain scale, and more like a load-function scale. For me, the warning sign is almost always extreme pain...but for you, you may have a few warning signs, like bad equilibrium or a fluttery heartbeat.
Yes, I hope people share! I'll add a prompt to the post. :)